TPP and CPRD have agreed on a solution for GP practices using SystmOne to be able to send pseudonymised daily data updates of patient data to CPRD. This will significantly increase the amount and geographical spread of data available for research through CPRD. It will also enable GP practices to more readily recruit suitable patients for NHS trials, subject to relevant consents.
The initial flow of data to CPRD from consenting pilot practices will take place during November of this year. The first tranche of practices will be able to join the network of CPRD contributing practices during the first quarter of 2019 followed by a phased rolled out to more SystmOne practices consenting to send data to CPRD.
Patient identity will be protected using a strongly pseudonymised linkage process, with an encrypted delivery mechanism. Medical records of patients who have opted out of their data being used for research will not be shared.
Information on CPRD
Clinical Practice Research Datalink (CPRD) is a government research service, jointly supported by the Medicines and Healthcare products Regulatory Agency (MHRA) and the National Institute for Health Research (NIHR), as part of the Department of Health and Social Care. For the past 30 years, CPRD has collected de-identified patient data from GP practices across the UK for public health research. Research using CPRD data has informed drug safety guidance and clinical practice and resulted in over 2,000 peer-reviewed publications. CPRD data and services support observational and interventional public health and clinical research. Contributing data to CPRD is endorsed by NHS England, the NIHR Clinical Research Network and the Royal College of GPs.