Thursday 24 April 2014

ResearchOne gets ethical approval

ResearchOne

ResearchOne gets ethical approval

 ResearchOne, the not-for-profit organisation, has now received the go-ahead from the NHS Research Ethics Committee (REC) and National Information Governance Board (NIGB) to build an anonymised research database.  Developed by TPP in partnership with the University of Leeds and the Technology Strategy Board, the ResearchOne database will provide regulated, approved access to anonymised data for large scale health and social care research.

 The project has been designed to facilitate the wider engagement of patients, clinicians and researchers in the direct pursuit of better healthcare. In the long term, the project aims to improve patient outcomes and develop risk stratification and decision support models, as well as helping with commissioning and organisational performance.

 Samantha Crossfield, a research analyst from TPP and the University of Leeds has been working for over a year on the project. “I am delighted we have now received ethical and governance approval for ResearchOne. The next step is to supply SystmOne users with the information they need to make an informed choice about opting-in to this exciting research programme.”

 The goal of ResearchOne is to transform data into knowledge. Patients, clinicians and academic researchers have been consulted throughout the project and will continue to provide direction through the database governing committees; each project will be scientifically assessed to ensure it will bring genuine value to health and social care. 

 The research database has the potential to hold data from primary, secondary, and social care settings, from over 26 million health records, building up comprehensive research records for innovative new work.  Susan Clamp from the University of Leeds, sees this as a crucial step forward for the research capability of the UK.  “The technological advancements utilised by ResearchOne enhance the capacity for secure access to valuable, quality data for the purpose of meaningful research.”

 More information about how organisations can get involved with ResearchOne will be published via SystmOne over the next couple of weeks. Detailed information will be distributed to SystmOne organisations to inform their patients and advise them on how to get involved.

Please note: Any patient data shown on this website is ficticious and is displayed for example purposes only.